Skip to main content

What helped children with PANS or PANDAS?

55 people recorded interviews about pans & pandas across 4 organisations. 25 of them mentioned better family or relationship life in their own words. The most common timeframe people described was over a year. Every figure below is a count of what people said in their recorded interview — not a clinical trial or a survey.

Parents describing diagnosis, treatment and recovery for PANS and PANDAS.

Individual results vary. This is one customer's first-hand account of their own experience, recorded on camera and published unedited. It is not medical advice, and nothing here is intended to diagnose, treat, cure, or prevent any condition. Talk to a qualified healthcare professional before making decisions about your health.

What people said changed

Counts of interviews where the person described this in their own words.

  • Family & relationships25 of 55 mentioned it
    So before working with the eczema program, my husband and I had gone to countless doctors' appointments.Olivia Frederick
  • Symptom relief20 of 55 mentioned it
    We had already spent so much money on creams, on different creams, on doctors, on the allergist, and we were gonna spend so much more that we were spending money on Band-Aids.Hailey Wright
  • Felt supported15 of 55 mentioned it
    I would recommend it to a family member or a friend with eczema because even with my family and the support from my family and my husband's family, no one really knows or can advocate for your kid the way the Eczema T…Hailey Wright
  • Better systems11 of 55 mentioned it
    So fast forward to today, he sleeps all night long, he loves the foods that he eats, he has a much better digestive system.Renata Walsh
  • Better sleep10 of 55 mentioned it
    Yes, there's the supplements and there's, you know, all of the creams and the diet, but this feels much more like a normal life where we sleep, we go places, we interact with people.Renata Walsh
  • Confidence9 of 55 mentioned it
    And trust me, I have tried every cream on the it was like the one of the only things that was giving me hope really was most surprising to me about this program was how much I gained education wise. it's completely ch…Olivia Frederick
  • Team & hiring9 of 55 mentioned it
    Jess if you have a chronic illness because you will have someone on your team, someone who is tuning into every detail of what's happening with your health and you will have somebody who you can reach at any point whe…Julia Burnham
  • Mood & stress8 of 55 mentioned it
    But we were able to use some FSA funds that helped defray the cost in our situation and also we realized that we'd rather deal with this, rather than it being a perpetual part of our family's stress and part of our fa…Aimee Garden

How long it took

  • Over a year · 1

Stories in this topic

Showing 12 of 55 interviews.

What people were sceptical about first

  • S o before I started working with Lauren Lee Stone, I had been a seasoned chronic Lyme PANS, Pandas mom, working with a lot of different practitioners, trying traditional things like antibiotics and all these different treatments to help my son heal from PANS.Roseann Capanna-Hodge
  • Hailey Wright initially balked at the cost but realized they were already spending significant money on 'Band-Aids' like creams and specialists. She now states it is 'worth every single penny' because it delivered true healing rather than temporary relief.Hailey Wright
  • I was struggling with chronic fatigue, unexplained rashes, different neurological symptoms, tingling pain in my arms, chest pain that I was worried was my heart.Julia Burnham

Frequently asked

What if traditional steroid creams aren't working for my child's eczema?
Olivia Frederick found that steroid creams were merely a 'band-aid' that provided temporary hope before the eczema returned. She transitioned to Dr. Temple's program to understand the root cause rather than just layering on more creams. — Olivia Frederick
What was your experience like before finding Dr. Ana-Maria Temple?
Before working with the eczema program, my husband and I had gone to countless doctors' appointments. We were on this endless cycle of no answers and the steroid cream treatments that were recommended to us by her pediatrician and other specialists. It was like a band-aid; it would totally clear things up, give us hop… — Olivia Frederick
What was the turning point that made you seek a different approach?
I was sitting in her primary care's office and she mentioned the risk of scarring and side effects from the original recommended treatment. I was ready to break down into tears because I was following everything to a T and nothing was working. At that point, I knew we had to do something different, which is when I fou… — Olivia Frederick
How can a clinician overcome feeling inadequate when treating complex chronic illness?
Raphael Lebovits found that joining the LDPC program provided the mentorship and peer group support necessary to remove the fear of not knowing everything. He emphasizes that having experts like Dr. Moorcroft and Dr. Montalvo to lean on allows clinicians to treat patients with more confidence. — Raphael Lebovits
Is Dr. Tom Moorcroft's training program based on scientific evidence?
Yes, Raphael Lebovits highlights that everything in the LDPC focuses on science and evidence-based studies. Dr. Tom ensures that relevant research and studies are easily accessible at the fingertips of every clinician in the program. — Raphael Lebovits
What is the philosophy behind Dr. Tom Moorcroft's approach to medicine?
According to Raphael Lebovits, Dr. Tom teaches that treating chronic illness and life itself is about balance. This sentiment was the primary factor that drew Raphael to the program, alongside the mantra 'slow is smooth, smooth is fast.' — Raphael Lebovits

Organisations in this topic

Related topics